APS Support UK
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Newly diagnosed

When you receive a diagnosis, you will want to know exactly what APS is. Following this, you will no doubt have a great many more questions to ask about the condition and how it can affect you so, to help you answer some of the more common questions, we have compiled a list of the most Frequently Asked Questions to act as a starting point.

The next thing you can do is …

Learn about APS

As knowledge of APS amongst medical professionals can be inconsistent, it is vital that you educate yourself as much as you can about your condition. Our section About APS helps you learn about the important facts including the causes, outlook, diagnostic pathway and treatment.

APS rarely affects people in the same way and can involve almost any part of the body, so it could be helpful to familiarise yourself with all the possible symptoms and learn about the unpredictable nature of the condition.

Find support

One of the first things you can do to get help is join our charity. Being a member means that you will receive your full membership pack, get regular updates with our eNews and know you're allowing us to continue with our vital work.

Finding an APS expert in your local area can sometimes be difficult, so we have created a directory of doctors with a special interest in APS compiled from information supplied by patients.

Take control of your health

APS can have an effect on many areas of your life so, to help you improve and cope with your day-to-day living, we have collected information on a variety of topics - from diet and exercise to life insurance - in our Living with APS section.

If you are one of the many APS patients who have to take lifelong warfarin, then you may be interested in reading about INR and self-testing as this can give you a certain degree of control over your lifestyle despite being on this medication.

Our Fact Sheets also provide you with practical advice including what to do if you need to stay in hospital or visit the dentist, how to inject with heparin, how best to talk to your doctor and advice on employment and benefits.

What are the symptoms?

APS can cause both low-grade symptoms and potentially fatal conditions as a result of blood clots. View our overview of APS symptoms.

What's the outlook?

Although there is currently no cure for APS the outlook for many patients is very positive, particularly those who have been diagnosed early and treated appropriately.

© 2018 APS Support UK (trading name of the Hughes Syndrome Foundation). Registered Charity Number 1138116. A company limited by guarantee registered in England 7268671.